EOLC describes the support and medical care given during the
time (hours, days, months, years) surrounding the eventual death of a child from
a terminal condition that advanced, became progressive, and then incurable. Pediatric
palliative care is a holistic family-centered approach, with the child and family
enwrapped in the center of a circle of professionals (multidisciplinary group
of caregivers) addressing spiritual, physical, social,
psychological, and physical needs in an attempt to prevent and relieve suffering.
Objectives: Understanding the concept (evolution and problems associated)
EOLC-palliative care, including the needs of patients and their families.
Methods: Meta-summary analysis of studies conducted will report the needs, concerns of patients
receiving these care -parents, and siblings; the health care provider's perspective
(Dead Donor Rule). The action of the health care system in improving EOLC services,
implementation of structures -TNEEL modules and ELNEC
for health care providers -PICU staff is reviewed.
Results: Findings will highlight the domains pertaining to family-centered
palliative care -involvement of child and
family in decision making, sibling’s needs, care planning, relief of pain and associated
symptom, cultural needs, faith, care continuity, support during grief and bereavement.
Death and dying affects the whole family, early identification and recognition of
EOLC choices influence the quality of life an individual experiences during the
dying process as palliative care is not concerned
about death but about life until death, the results of this research will emphasize
factors to be taken into consideration in the creation of high-quality pediatric
Pediatric, palliative care, end of life care (EOLC), chronic diseases, communication,
family centered, advanced care planning, terminal illness.
TNEEL -The Toolkit for
Nurturing Excellence at End-of-Life Transition.
ELNEC- End-of-Life Nursing
· PICU - Pediatric Intensive care Unit.