Psychosocial Burden of Mothers’ Care of Children with Autism Attending Federal Neuro-Psychiatric Hospital Yaba Nigeria

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DOI: 10.21522/TIJNR.2015.08.01.Art002

Authors : Olubiyi, S K, Anyebe, E.E, Ndie E.C, Ajidahun . J, Ayodele B.J, Irodi C.C, Ibraheem M.A, Ayo E.E


Autism spectrum disorder (ASD), or simply autism, occupies an extreme position among childhood pathologies due to its severity, duration, and impact on the family. This descriptive study assessed the psychosocial burden of care on 60 mothers of children with childhood autism. The instrument consisted of socio-demographic characteristics, 12-item General Health Questionnaire (GHQ-12), and the Zarit Caregiver Burden Interview (ZCGI). Data were analyzed using SPSS version 23. Results indicated a significantly high level of psychological distress (51.8%) among mother of children with autism, and (30%) thirty percent of mothers of children with autism had a low burden. Bivariate analysis revealed factors that were associated with psychological distress in mother of these children were the presence of social type of impairments and a high number of impairment in the child having to cut down or give up work and a high burden score on these women believed to be a spillover from the care burden. Results also showed the number of impairments at various periods: 12 months (51.79%), 6-12 months (30.36%), and less than 6 months are (17.86%). Mothers’ employment rate was cut down to 51.9%, while 25.9% gave up their job completely. These were significantly and independently associated with psychological distress. Conclusively, the study revealed that mothers of children with autism experience significant higher levels of burden. Hence, an urgent need for the implementation of intervention programmes to reduce the burden of care among this group of mothers in Nigeria with social support and governmental assistance and approaches.

Keywords: Autism, Caregiver burden, Mothers, Psychosocial burden, Public health.


[1] Swanepoel, D., Hugo, R., and Roode. R. 2004. Auditory steady-state responses Journal Archives of otolaryngology-head & neck surger. 130 (2) Pgs. 531-535.

[2] Fornbonne, B. 2006. An Evaluation of Educational Provision of Children with Autistic Spectrum Disorders. A Report by the Inspectorate of the Department of Education and Science 2006.

[3] Hastings, R.P., KoushoffH, Ward, J.J., Espinosa FD, Brown T, Belington B. 2005. Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism; 30459-70 [3].

[4] Higgins, D.J., Badey S.R. 2005. Peace factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder autism. 9:125-27.

[5] Volkmar, F. R., Paul, R., Rogers, S. J., and Pelphrey, K. A. (Eds.). 2014. Handbook of autism and pervasive developmental disorders: Diagnosis, development, and brain mechanisms (Vol. I). Hoboken, New Jersey: John Wiley and Sons.

[6] Yirmiya, N, Shacked, M. 2005. Psychiatric disorders in parents of children with autism a mental analysis J. child psycho and psychiatry: 46.

[7] Omigbodun, O. 2002. Stress in families. The burden of having a child with autism on a family. A paper presentation of the autism training Programme,, Sheraton Hotel towers, Abuja.

[8] Boyd, B. 2002: Examining the Relationship BetWeen Stress and Lack of Social Support in Mothers of Children with Autism.

[9] Goodman, G., Williams, G.M. 2002. Interventions for Increasing the Academic Engagement of Students with Autism Spectrum Disorders in Inclusive Classrooms. Vol. 39(6).

[10] Boushey A. 2001: Focus on Autism and Other Developmental Disabilities, vol. 16, 1: pp. 27-30.

[11] Howlin P., Goode, S., Hutton, J., Rutter, M. 2004. Adult outcome for children with autism. The Journal of Child Psychiatry and Psychology. Vol 45. Issue 2. Pgs. 212-229.

[12] Tonge B.J., Brereton, A., Kiomail, M. Mackinnon, A.V. & Taffe, D. (2006). Effects on the parental mental health of an education and skills training program for parents of young children with autism. A randomized controlled trail. Journal of the American Academy of child and adolescent psychiatry 45(5)561-569.

[13] Gureje, O., Obikoya, B. 1990: The GHQ-12 as a screening tool in a Primary Health Setting. Soc Psychiatry Psychiatr Epidemiol.:276–80.

[14] Zarit S., H., Lauren, R., Bangerter, B., Karen, L. F. 2006. Moderators of Mother’s Problems on Middle-Aged Offspring Depressive Symptoms. The Journals of Gerontology: Series B, Volume 71, Issue 1, Pages 41–48,

[15] Hopkins R.S., Jajosky R.A., Hall P.A., Adams D.A., Connor, F. J., Anderson, W. J., Fagan, R.F., Aponte J.J., Jones G.F. Nitschke D.A. Worsham, C. A. Adekoya, N, Chang M. 2003. In American Organization Center for disease control and prevention

[16] Boeckers, T. M., Bockmann, J., Kreutz, M. R., and Gundelfinger, E. D. 2002. ProSAP/Shank proteins - a family of higher-order organizing molecules of the postsynaptic density with an emerging role in human neurological disease. J. Neurochem. 81, 903–910. doi: 10.1046/j.1471-4159.2002.00931. x.

[17] Bozkurt, G., Uysal, G., and  Düzkaya, D.S. 2019. Examination of Care Burden and Stress Coping Styles of Parents of Children with Autism Spectrum Disorder. Journal of Pediatric Nursing; 47:142-147. doi: 10.1016/j.pedn.2019.05.005. Epub 2019 May 27.

[18] Dhafer, A.J. Al-Mossawy, Arafat H. Al-Dujaili. 2017. Psychosocial Burden among Caregivers of Children with Autism Spectrum Disorder in Najaf Province. International Journal of Current Research and Academic Review 5(4), 122-134. doi:

[19] Lawal, H., Anyebe, E.E., Isa, A., Abdulkareem, H.M. and Salami, R.A. 2021. The Psychological and Physical Burden of Family Care Givers of Patient With End-Stage Renal Disease in A Tertiary Hospital in North West, Nigeria, IFE PsychologIA: An International Journal; 29(2); available at

[20] Lawal H., Anyebe E.E., Obiako O.R. 2014. A pattern of Neurological Dysfunctions in Children attending Outpatient Clinics in ABUTH Zaria, and Psychological Challenges faced by their Parents. Journal of Pharmaceutical and Biomedical Sciences; Vol.04; No.08: pp.679-684; ISSN NO- 2230 – 7885; available online at

[21] Lawal, H. Anyebe, E.E. and Obiako, O.R. 2014. Domestic and Activities of Daily Living Challenges on Parents of Children with Neurologic Deficit in Zaria, Northern Nigeria: A Hospital-based study; Asian Journal of Medical Sciences, Vol.6, No.4: pp.40-44, 2014 ISSN: 2040-8765; e-ISSN: 2040-8773 © Maxwell Scientific Organization, 2014 (August). Available online at

[22] Picardi, A,, Gigantesco, A,.,Tarolla, E.,Stoppioni, V., Cerbo, R.,4 Cremonte, M., Alessandri, G., Lega, I., and Nardocci, F. 2018. Parental Burden and its Correlates in Families of Children with Autism Spectrum Disorder: A Multicentre Study with Two Comparison Groups, Clin Pract Epidemiol Ment Health. 14: 143–176. doi: 10.2174/1745017901814010143.