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Sexual and Reproductive Health Rights among People with Disabilities in Juba County, South Sudan

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DOI: 10.21522/TIJPH.2013.14.03.Art016

Authors : Sebit Mustafa Sebit, Diana Joseph Wani Gore

Abstract:

The United Nations emphasizes inclusivity and leaving no one behind, advocating for universal health care, including sexual and reproductive health (SRH). However, the patterns of SRH rights among persons with disabilities remain poorly understood, with this group facing numerous barriers to accessing SRH services. We aimed to examine patterns of Sexual and Reproductive Health Rights (SRHR) among people with disabilities in South Sudan, focusing on Juba County. The study utilized qualitative methods for data collection, supplemented by in-depth quantitative secondary data. The researchers gathered qualitative data using key informant guides and observation. The study analyzed data using a master sheet. The findings revealed significant challenges in accessing SRH services, particularly in rural areas, where comprehensive services are scarcer than in urban centers. Men often mistrust family planning initiatives, viewing them as threats to their authority. Older individuals often exclude themselves from SRH relevance. Barriers such as stigma, discrimination, financial and physical constraints, limited perceived need, and gendered blame further hinder access. Gender-based violence, misconceptions, and negative associations exacerbate these challenges. Notably, comprehensive sex education in schools emerged as a critical intervention to foster liberal attitudes and self-control. In conclusion, the study underscores the exclusion of persons with disabilities from SRHR and highlights the urgent need for inclusive programs to address their specific needs. Limited access to services in rural areas, societal stigma, and misconceptions impede progress. Efforts should focus on promoting inclusive policies, enhancing awareness of SRHR for women with disabilities, and implementing comprehensive sex education. Addressing societal perceptions and fostering inclusivity are vital for advancing SRHR for persons with disabilities in South Sudan.

References:

[1].   United Nations Committee on Economic, Social and Cultural Rights. General Comment No. 22 (2016) on the right to sexual and reproductive health (Article 12 of the International Covenant on Economic, Social and Cultural Rights). Geneva: United Nations; 2016. E/C.12/GC/22.

[2].   Mac-Seing M, Zarowsky C, D’Ambruoso L. Disability and sexual and reproductive health service utilisation in Uganda: an intersectional analysis of demographic and health surveys between 2006 and 2016. BMC Int Health Hum Rights. 2022;22:7.

[3].   United Nations. Report of the International Conference on Population and Development: Cairo, 5–13 September 1994. New York: United Nations; 1995.

[4].   World Health Organization, Office of the United Nations High Commissioner for Human Rights, UN Women, UNAIDS, UNDP, UNFPA, UNICEF. Eliminating forced, coercive and otherwise involuntary sterilization: an interagency statement. Geneva: WHO; 2014.

[5].   World Health Organization. HIV/AIDS [Internet]. Geneva: WHO; [cited 2019 May 28]. Available from: https://www.who.int/features/qa/71/en/

[6].   World Health Organization. Call to action to the global community: attaining universal health coverage through sexual and reproductive health and rights and HIV linkages. Geneva: WHO; 2018.

[7].   National Bureau of Statistics. Population Estimation Survey (PES) 2021. Juba: Republic of South Sudan; 2021.

[8].   International Organization for Migration. Disability Access and Inclusion Survey: Aweil South County, South Sudan. IOM DTM; 2023.

[9].   Pérez-Curiel P, Vicente E, Morán ML, Gómez LE. The right to sexuality, reproductive health, and found a family for people with intellectual disability: a systematic review. Int J Environ Res Public Health. 2023;20(2):1587. https://doi.org/10.3390/ijerph20021587

[10].  Ahmed WAM, Shokai SB, Abduelkhair IH, Boshra AY. Factors affecting utilization of family planning services in a post-conflict setting, South Sudan: a qualitative study. AIMS Public Health. 2015;2(4):655-66. doi:10.3934/publichealth.2015.4.655

[11].  Lawry LL, Gabor R, Katele J, et al. Mixed-methods reproductive health knowledge, attitudes and practices survey of IDPs, returnees and host communities in Jonglei State, South Sudan. BMJ Open. 2025;15(1):e083905. doi:10.1136/bmjopen-2024-083905.

[12].  Hartmann-Boyce J, Lindson N, Butler AR, McRobbie H, Bullen C, Begh R, et al. Electronic cigarettes for smoking cessation. Cochrane Database Syst Rev. 2022 Nov 17;11(11):CD010216.

[13].  Ganle JK, Baatiema L, Quansah R, Danso-Appiah A. Barriers facing persons with disability in accessing sexual and reproductive health services in sub-Saharan Africa: a systematic review. PLoS One. 2020;15(10):e0238585. https://doi.org/10.1371/journal.pone.0238585

[14].  Akasreku BD, Habib H, Ankomah A. Pregnancy in disability: community perceptions and personal experiences in a rural setting in Ghana. J Pregnancy. 2018;2018:8096839. https://doi.org/10.1155/2018/8096839

[15].  Scott J, Averbach S, Modest AM, Hacker MR, Cornish S, Spencer D, et al. An assessment of attitudes toward gender inequitable sexual and reproductive health norms in South Sudan: a community-based participatory research approach. Conflict Health. 2013;7:24. doi:10.1186/1752-1505-7-24.

[16].  Using vignettes to gain insights into social norms related to voluntary family planning and gender-based violence in South Sudan. Glob Health Sci Pract. 2024.

[17].  They will say you want to make their home die: a mixed methods study to assess modern family planning use in partnered South Sudanese refugee and host populations in Northern Uganda. BMC Womens Health. 2022.

[18].  Kane S, Kok M, Rial M, Matere A, Dieleman M, Broerse JEW. Social norms and family planning decisions in South Sudan. BMC Public Health. 2016;16:1193. doi:10.1186/s12889-016-3839-6.

[19].  World Health Organization, United Nations Population Fund. Promoting sexual and reproductive health for persons with disabilities: WHO/UNFPA guidance note. Geneva: WHO; 2009. ISBN 9789241598682.

[20].  UNICEF South Sudan. The situation of children and women in South Sudan 2018–2020: situation analysis. Juba: UNICEF; 2021.

[21].  Ministry of Gender, Child and Social Welfare, Republic of South Sudan. National Disability Action Plan 2021–2030. Juba: Government of South Sudan; 2021.